Tuesday, December 15, 2009

Ty Updates

On the 30th of November, I took Ty down to the UofU to meet with 2 doctors who specialize in autoimmune diseases. We were with them for over an hour, going over medical history and what not. They said that she has alot of the symptoms of Sjogren's Syndrome but that we would need to get lab work and an eye test done to confirm. When that appointment was over, we headed to Primary Children's to get the lab work done. 6 vials! Sheesh!

A couple of days later we went to the eye doctor to have a Schirmer's test done. It is a little strip of paper that measures your tear production. Well, that was normal... she filled up the little strip just fine. Only thing we learned from that visit was that she has a cataract in her right eye, but she wont need to do anything about it for another 50-60 years.

Last week the PA for the Immunology department called and said all her lab work came back normal. She does not have any autoimmune diseases or immune deficencies. Well, that's great... but what is causing all this? She didnt know and said to follow up with our ENT.

I had planned on calling Dr Muntz this week to see what else he is thinking... but ends up I have to call him today b/c my little girl came home from school yesterday with a big lump on the left side of her neck. Almost 2 months to the date of her last lymph node infection. Of course by the time I knew about it yesterday it was too late and the office was closed so I have to call this morning.

She is miserable... neither of us slept last night. She was just screaming in pain... can't chew anything so had a problem with her Tylenol. We were up for hours until I got her into the tub to help relax her and then to bed... 2 hrs before my alarm went off for the day.

I am frustrated... I am tired... I am sick of seeing my daughter go through this. I trust that God has a plan for her... that this will someday make sense, but me and my impatient nature want answers... or atleast comfort. Its hard to be a mom and see your child like this and not be able to do anything.